Friday, October 31, 2014

#flashbackfriday Linux Man & Bat Girl: On Superheroes, Halloween and Healing


"We live in a time when the words 'impossible' and 'unsolvable' are no longer part of the scientific community's vocabulary."
~Christopher Reeve, Actor and Activist

Happy Halloween! For many it's a time to be ghoulish; for others to be princesses and princes perhaps Olaf and Elsa but for me Halloween is a time to unleash the superhero within.

Four years ago Tom and I were the dynamic duo of Linux Man (with Tom sporting a Red Hat Fedora) and Bat Girl. We cheered on our friends at the Oak Square 5K on Saturday and on Sunday ran the Superhero 5K in Cambridge.



I PR'ed the Superhero 5K and went on to PR the Jingle Bell Run 5K in December.

My superhero powers were temporarily suspended with the kryptonite of my nephew's suicide in March of 2011.

This Halloween I am a recharged superhero. Tom and I continue our wonderful journey as the Dynamic Duo. Here we are crossing the finish line of the Spectacle Island 5K and at Tom's finish last week at the Cape Cod Half Marathon:



I am aware of my healing power and the strength of my Spirit and mind. I join forces with my superhero therapist, Joseph, at Sollievo Massage and Bodywork as together we triumph over the dark forces that once tried to destroy me mind, body and Spirit, to bring forth my light, my love and my wholeness. Healing is happening. We are allowing energy to flow and create new nerves and neuromuscular pathways. I can pour a cup of tea now with steady hands.

When one heals we all heals.

I can feel the presence of Christopher Reeve in the world, a superhero in every sense of the word and his intention to unlock the door to healing spinal cord injuries. There is a collective consciousness of healing with The Big Idea:



Transplantation of nasal cells to repair a spinal cord injury: Paralyzed man walks again after cell transplant and Paralyzed groom walks his bride down the aisle using an exoskeleton.

Halloween is a time when we conquer our fears of the things that go bump in the night; a time when we dispel darkness with the flame of Truth, light, love, joy and a sense of playfulness. We share the sweetness of life by opening our doors and our hearts to the children who allow their imaginations to run wild as they embrace whatever character they choose to embody tonight.

My imagination runs wild with possibility as I know first hand the power of healing emotional and physical wounds from paralytic polio and violence. I no longer fear the ghosts of my past. They have gone into the ethers of the Universe.

I am here now. Superhero to bring healing, love, light and joy to the world.

Happy Halloween!



The first 7 years of my healing odyssey are chronicled in Coming Home: A Memoir of Healing, Hope and Possibility available on Amazon. I donate 50% of royalty payments to The One Fund Boston to help survivors and their families who were affected by the tragic events of 4/15/13.



My 2nd book, "Journey Well," is coming soon. 50% of book proceeds will be donated to AccesSportAmerica to help them continue their life changing programs:







Tuesday, October 28, 2014

Olde Cape Cod - Part III - Stories from the Finish Line

I love how the Universe directs us to exactly where we are supposed to be. We thought that the Cape Cod Marathon was an out and back route like the Half. When we arrived to what we thought would be our viewing place for the day along the beach in Falmouth Heights, a race official told us that most of the runners had gone through the 3.5 mile mark. We cheered on the back of the pack runners and had to decide what to do next. I felt a stirring to go to the finish line and set up camp. As we drove to the finish line, we cheered on the back of the pack runners through open windows with the bells that Marcie's mom loaned to us after our delicious dessert and conversation on Saturday evening.

Meeting Bob and Marianne Gould
She seemingly stopped in her tracks and turned around. "Are you two comfortable there?" she asked. "Oh yes, we replied." We had the warm sun to take away the chill from the wind. She came back and we started chit chatting. They were wearing Cape Cod Marathon volunteer jackets. Tom told them he ran the Half and we wanted to cheer on the finishers today. We talked about Boston and Meb. "Oh I met Meb," she said. "I was at the Falmouth Road Race. Bob was with the Spaulding Rehab team where he had volunteered as support crew to them. He had a spinal cord injury...." That turned the tide of the conversation. We talked about Spaulding and who we knew in common from the Development Team. He is a neuroscientist who has been studying spinal cord injuries. He was in a bike accident that left him paralyzed in 2011. He had to learn to walk all over again and did with the help of Spaulding. We shared both the challenges and triumphs of recovering from a spinal cord injury. I gave them my card. Don't ask me why I had business cards with me at the finish line of the marathon. I just happened to have them with me in the running bag we took with us. They went off to their volunteer assignment and said they would let us know when they will be in Boston for his follow up appointment at Spaulding.

Kat and Dan
Remember I mentioned taking what I thought was a random photo at the starting line of the Cape Cod Half Marathon in yesterday's post? She was sitting on the sidewalk and we struck up a conversation. They ran the Half on Saturday and on Sunday, her friend Dan ran the Marathon to complete the Chowda Challenge. She said that she knew she had a long wait but loves being support crew. We talked about the Boston Marathon. She watches it at mile 24. She lives close to us in Brookline. We spent 3 hours together tracking another friend who was running her first marathon and Dan. The announcer at the finish line was amazing at getting the crowd to cheer in runners who were struggling to the finish. Kat had her cowbell from the Boston Marathon and like Tom at the Tufts 10K, developed a cowbell blister! That goes under the category of injuries frequent to spectators. We talked all things running and life. I gave her my card as we said goodbye and said we'd stay in touch.

When I got back to the hotel and saw the random photo I took at the starting line I gasped and interrupted Tom's meditation to show him that the photo I had taken was of Kat and Dan. Boston Strong is a magnet for connections.



Team DiLorenzo - Star Wars family
"Are you at the finish line?" A surprise text from Marcie. "Yes." "Okay we'll walk down to meet you." Because I had posted we were at the finish line on Facebook, Marcie wanted to come and see us before the end of the weekend. Marcie was Princess Leia. Vann and Gino, Luke Skywalker and Darth Vader and Paul as Obi-Wan Kanobi. Radley was an Ewok.



Kat had looked up the times for a BQ, and was taking note of the finishers who had qualified for Boston. We both noted what a tough course it was to qualify on. Marcie looked at the finisher's clock and was thinking what time she would have needed for a BQ and said that she's not ready for that pace. I reminded her of when she did BQ and how I loved the race report she shared on Facebook.

Tommy Leonard
We had lunch at the Quarterdeck after seeing a majority of the finishers pass through the finish. Tommy said that he couldn't find a copy of his book but wanted our address so he could send us an autographed copy. He refused to take any money for it even though on Amazon it notes that a portion of the book proceeds go to his retirement fund.



Tommy shared with us that his vision for the Falmouth Road Race was to make it more of a social event, almost a boy meets girl kind of race. We told him about our friends Marcie and Paul who were married at Falmouth last year. He remembered! There was a group of runners wearing medals, marathon jackets and you could feel the vibrant energy of the running commmunity. They were waiting their turn to talk with the legendary Tommy Leonard. We said our goodbyes and headed to the beach.



Tom and I were inspired to drive to Woods Hole. There were several back of the packers still out on the course with fierce determination to finish. We cheered them on. The Emergency Radio vehicle was behind one woman who was walking. It didn't matter that the finisher's clock had stopped and that the finish line would probably be closed by the time she arrived. She was going to finish her race and how wonderful that there was a race official car available to provide her with an escort to ensure her safety. I remembered how much it meant to Team McManus to have a motorcycle escort at the end of the Father Bullock 5K.

We decided to head back to Woods Hole for dinner and saw this spectacular sunset:



This weekend on Olde Cape Cod was a time for making new memories, new connections, enjoying the company of friendships already made and crossing a new starting line in the lives of Team McManus.



Knowing the challenges first hand of living with a neuromuscular condition, on Thanksgiving, I will be running the Boston Volvo 5K Village Road Race to raise money for the National Multiple Sclerosis Society New England Chapter. When we unlock the key to one neuromuscular condition, we can unlock the door to many. You can donate to my run on my fund raising page.

The first 7 years of my healing odyssey are chronicled in Coming Home: A Memoir of Healing, Hope and Possibility available on Amazon. I donate 50% of royalty payments to The One Fund Boston to help survivors and their families who were affected by the tragic events of 4/15/13.



I'm working on my 2nd book, "Journey Well," due out later this year:



Monday, October 27, 2014

Olde Cape Cod - Part II - Then and Now

The alarm went off at 5:00 am on Saturday. We got dressed and headed out for a pre-race breakfast at Mary Ellen's. They are so amazing. Just like in 2011, they let Tom bring his special pre-race cereal mix providing him with a bowl and milk. I enjoyed scrambled eggs and toast with OJ. Unlike 2011, I was dressed in running clothes. In 2011, we drove to the starting line making sure that I was dressed warmly and had a chair available to spectate. I remember I spent the time writing in my journal. In 2011, I missed Tom crossing the finish line because I was distracted and not living in the present moment. Before we left for the start I checked email and Facebook. To what did my wondrous eyes appear but a book review of Coming Home:A Memoir of Healing Hope and Possibility by my fellow L Street member, Alma McDermott, also known as Mrs. Mac. Unlike 2011 when I had stopped racing, I am running the Boston Volvo Village 5K for MS on Thanksgiving. I received several emails that donations were made to my fundraising page.

It's a mile from the Falmouth Inn to the starting line. We did about a 15:30 minute pace as a warm up for Tom and so I could get my run in. I walked around with Tom as he geared up for his race and took photos:



I was moved to see a Boston Strong t-shirt and snapped this photo thinking I was taking a random photo but more about that in tomorrow's post so stay tuned!



Cannon time - yes only on olde Cape Cod would they use a cannon to signal the start of the race and they were off. I ran back to the hotel, ditched some items we didn't need and headed back to the finish line. I found the perfect spot where I would be able to see Tom and my friend Jess as they came down the chute and then turned the corner to receive their medals.

Tom was nursing a calf injury and was expecting to run about a 10 minute mile. I was surprised to see him come in at a 2:06:19 just a couple of minutes shy of his BAA half PR two weeks ago! He cooled down and left me at the finish line to see if I could catch Jess coming in. We looked at each other and I knew it was her only her bib said Scarlett which confused me. We hugged and high-fived with beautiful photos to capture the joy at the finish line. She told me that she had officially transferred the bib of her friend who was injured but she still had to wear the bib with Scarlett's name on it. Jess waited for me at the finish line of the Tufts 10K and gave me that extra boost that carried me to my PR.



Unlike 2011, I was able to stand at the finish line standing for three hours and then we walked the mile back to the hotel.

While at the finish line, the announcer encouraged us to enjoy the Falmouth businesses. He told us to head over to the Quarterdeck to see Tommy Leonard. For those of you not familiar with Tommy Leonard, he is the founder of the Falmouth Road Race and was an integral part of the Boston running scene as he welcomed the heroes of the Boston Marathon into the Eliot Lounge. When we walked into the Quarterdeck, there was an elderly man sweeping the entrance. He said, "Come in. Come in. The water's fine." I thought it was Tommy Leonard but couldn't imagine him sweeping out the entry way to the restaurant. After we were seated I asked the hostess when Tommy Leonard would be there imagining this larger than life person having a special appearance time. She said, "That was him when you came in." Tom and I were in awe. The hostess told us that he spends his days working at the Quarterdeck helping out with different jobs. He has his meals there and 'holds court' as he talks about running then and now. After we had a delicious lunch we went over to where he was holding court. He used to run around the Cleveland Circle Reservoir and the Boston College Campus. He smiled somewhat sheepishly when we talked about reading about him in Bill Rodgers' book, "Marathon Man". He was deeply interested in us and what we ran, where we run and I shared my story with him. He is also a veteran who has no complaints about the care he gets at the VA these days. He told us to come back on Sunday; that he would look for a copy of his memoir to give to us so that he could autograph it.

I love how Facebook keeps us connected. Our dear friends Team Dilo as we call them, told us that they were going to be on Main Street for the Halloween Parade and would we be able to meet up? I met Marcie and Paul in person for the first time at the 2011 Cape Cod Half Marathon. Marcie did a cartwheel at the finish line. They are such special friends who we met through running and even though I lost touch with them during my running hiatus, we quickly reconnected after April 15, 2013 and our friendship has grown that much closer. Marcie asked if it would be possible to bring the kids over for a swim and then we could have dessert at her parents' house. We shared precious moments with this precious family:



What a difference between how I felt and what I was able to do from 2011 to now. Friendships grow stronger. My relationship with Tom is stronger. I am stronger in mind, body and Spirit. I am whole. I am healing. As Tom said as we packed on Friday, ""This will be like old times only totally different." Truth.

Join me tomorrow for Olde Cape Cod - Part III - Stories from the Finish Line.



Knowing the challenges first hand of living with a neuromuscular condition, on Thanksgiving, I will be running the Boston Volvo 5K Village Road Race to raise money for the National Multiple Sclerosis Society New England Chapter. When we unlock the key to one neuromuscular condition, we can unlock the door to many. You can donate to my run on my fund raising page.

The first 7 years of my healing odyssey are chronicled in Coming Home: A Memoir of Healing, Hope and Possibility available on Amazon. I donate 50% of royalty payments to The One Fund Boston to help survivors and their families who were affected by the tragic events of 4/15/13.



I'm working on my 2nd book, "Journey Well," due out later this year:






Sunday, October 26, 2014

A New Olde Cape Cod Part I

"This will be like old times only totally different," Tom said to me as we were packing for our long weekend in Falmouth. We have a long history with Falmouth both before kids and with kids. This weekend marks a new chapter of Team McManus after kids. Next Saturday our daughter moves into her own apartment. This weekend has been a time of nostalgia, magic and wonder for us.

Before we left for the Cape, I asked Tom if we could get the page numbers on my manuscript for Journey Well. I am eager to get a proof and see what changes might need to be made before we go to press. We uploaded the manuscript and it's the first time that we were able to nail the formatting and layout on the first try. The proof will arrive next Wednesday and we get out the red pen to ensure a wonderful finished product before going to press.

As we drove by the rotary for the National Cemetery at Bourne, Tom said, "Hi Herb. Hi Jack and Danny." I chimed in "Hi Helen's parents." Herb was a family friend who was a volunteer I supervised at the VA. Jack and Danny, Tom's uncles who are buried at Bourne.

When we arrived on Friday we went to Mary Ellen's, our go to place across from the Falmouth Inn, for brunch. The waitress asked if Tom wanted home fries. After he said "No. You can keep them." She said, "Gone." She said it with the same inflection as our friend Herb. We both gasped and told the waitress how Herb would have this expression with a hand gesture "Gone" and used the same inflection that she used. We felt Herb's presence blessing our Falmouth vacation. When we went for our swim at the hotel pool, we found a 1984 penny; the year that I received my Masters in Social Work from Boston College.

We drove by the beach and captured the beauty of Olde Cape Cod.



The energy at the Expo was electric.



I won a t-shirt in a Facebook contest on the Cape Cod Marathon Facebook page.



It's tradition for us to buy something from Janji if they are at a race Expo.



We asked what time Landucci's, the restaurant at the Falmouth Inn, opened for dinner where we went for our pre-race dinner when Tom ran in 2011. "They moved to Cotuit about a month ago," the staff person at the Falmouth Inn told us. He gave us some alternative places to eat. We had loved Landucci's and were disappointed that we would have had to drive for about 25 minutes each way to go to their new restaurant. We opted to eat at La Cucina Sul Mare.



The hostess, upon seeing my L Street Jacket, said she is so excited that she is going to move to South Boston in January. She is finishing up her doctorate in physical therapy. She also told us that she is running Boston as a charity runner and was excited but very nervous. I told her my story and she said she had to give me a hug and was now inspired to get out there and train for Boston.

We had wonderful food and impeccable service. There is always something better waiting when we let go of clinging to what is comfortable and familiar.

We came back to the hotel to get a good night's sleep. 5:00 am would come soon enough.....


Knowing the challenges first hand of living with a neuromuscular condition, on Thanksgiving, I will be running the Boston Volvo 5K Village Road Race to raise money for the National Multiple Sclerosis Society New England Chapter. When we unlock the key to one neuromuscular condition, we can unlock the door to many. You can donate to my run on my fund raising page.

The first 7 years of my healing odyssey are chronicled in Coming Home: A Memoir of Healing, Hope and Possibility available on Amazon. I donate 50% of royalty payments to The One Fund Boston to help survivors and their families who were affected by the tragic events of 4/15/13.



I'm working on my 2nd book, "Journey Well," due out later this year:





Saturday, October 25, 2014

Olde Cape Cod

Tom and I are enjoying ourselves on a much needed and much deserved vacation in Falmouth. He is running the Cape Cod Half Marathon today. It's always an energizing experience for me to be among the running community and to watch a race from the sidelines. After 6 races since June and two PR's, I am delighted to be on the sidelines and be support crew for Tom.

While we are away enjoying Falmouth, one of our most favorite places to play, here are some photos from when Tom ran the Cape Cod Half in 2011:

The beautiful morning sky in Falmouth


The starting line with Tom and Hassan from L Street Running Club. Hassan did the Chowda Challenge running the Half on Saturday and the Full on Sunday. At age 62 he finished 6th overall in the Challenge with a total time of 5:01:52.


Finish line and the finisher's tape waiting for the winner


and the winner Joseph Ekuom with a time of 1:18:31 from High Falls, NY


Tom told me he'd be running about a 9-10 minute mile. He ran an 8:17 pace and I missed him crossing the finish line!

We had an amazing post race dinner at Landucci's at the Falmouth Inn where we will be staying again this year. The mouth watering dipping oil and appetizer:



As Tom said to me as we were packing, "This will be just like old times only totally different." I'm excited about the new memories we will be creating this weekend on Olde Cape Cod.


Knowing the challenges first hand of living with a neuromuscular condition, on Thanksgiving, I will be running the Boston Volvo 5K Village Road Race to raise money for the National Multiple Sclerosis Society New England Chapter. When we unlock the key to one neuromuscular condition, we can unlock the door to many. You can donate to my run on my fund raising page.

The first 7 years of my healing odyssey are chronicled in Coming Home: A Memoir of Healing, Hope and Possibility available on Amazon. I donate 50% of royalty payments to The One Fund Boston to help survivors and their families who were affected by the tragic events of 4/15/13.



I'm working on my 2nd book, "Journey Well," due out later this year: